Fibromatosis, also known as desmoid tumors, is a rare condition characterized by the growth of noncancerous but aggressive tumors in the body's connective tissue. These tumors can cause pain, restrict movement, and in some cases, can become life-threatening.

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Fibromatosis FAQ


What causes fibromatosis?

The exact cause of fibromatosis is unknown, but the condition has been linked to mutations in specific genes.

Is fibromatosis cancerous?

Fibromatosis tumors are noncancerous, but they can be locally aggressive and invade surrounding tissues.

How is fibromatosis diagnosed?

Diagnosis is often based on imaging tests like MRI or CT scans, along with a biopsy to examine the tumor cells.

What are the treatment options for fibromatosis?

Treatment may include surgery, radiation therapy, or medications such as Sorafenib and Imatinib.

Can fibromatosis recur after treatment?

Yes, fibromatosis has a tendency to recur even after treatment, requiring continued monitoring and possible follow-up interventions.

Is fibromatosis life-threatening?

While fibromatosis is typically noncancerous, in some cases, it can lead to serious complications if the tumors press on vital organs or blood vessels.

Can fibromatosis cause pain?

Fibromatosis tumors can cause pain and discomfort, especially as they grow larger and impinge on nearby structures.

Are there any lifestyle changes to manage fibromatosis?

There are no specific lifestyle changes, but maintaining a healthy lifestyle can support overall wellbeing, which is important for managing the condition.

Can fibromatosis affect mobility?

In some cases, fibromatosis tumors can restrict movement or cause mobility issues, depending on their location and size.

Is fibromatosis hereditary?

There may be a genetic component to fibromatosis, but the majority of cases occur sporadically without a clear family history.

Are there any dietary restrictions for fibromatosis patients?

While there are no specific dietary restrictions, maintaining a balanced and nutritious diet can support overall health and wellbeing.

Can fibromatosis affect children?

Fibromatosis is rare in children, but it can occur at any age, including in pediatric patients.

What are the long-term effects of fibromatosis?

The long-term effects of fibromatosis depend on the tumor's size, location, and response to treatment. Regular medical monitoring is essential.

Are there support groups for individuals with fibromatosis?

There are support groups and online communities where individuals with fibromatosis can connect, share experiences, and access valuable resources.

Can fibromatosis be managed without medical intervention?

While some mild cases of fibromatosis may be managed with watchful waiting, medical intervention is often necessary to address symptoms and prevent complications.

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Information provided by Maryam Abdullahi-Mahdi. Reviewed by Mr. Matthew Liew